Antother Seizure :(

Well we went a whole week without a seizure and now they have returned :( It seems like this will never end. Last night he was really crabby he got up on the couch and asked for a blanky and that was it. . .I covered him up and a few seconds later he went into a seizure. I do believe he had one back to back and after the second one he fell asleep.

I feel weird calling them seizures because when people hear the word seizures they automatically think convulsing when that is not the case in all seizures. There are seizures where the person will stare for a few seconds at a time but have multiple seizures daily and then there are the seizures like my son's Complex Partial Seizures where he loses consciousness and he stares he also has lip smacking with his and moves his hands sometimes. I will post a video of Rylans.

http://www.youtube.com/watch?v=UkMh64jZkOY

3rd one this week!!!!!

So these seizures are starting to get more frequent. Last night I gave him his meds (per his neuro). He was throwing a fit to take a bath so I was giving him a bath and he normally will stay in there and play for a while, but not last night. As soon as I washed him up he wanted out. So i took him out and laid him on the couch wrapped up in a towel. I went to get him a diaper and his nighties, well before I could even start looking for his nighties I hear Tony's grandma say "I think he is having one of his seizures" So i stopped what I was doing and checked him over and made sure he was ok. I put his diaper on and he kept crying for a blanket so I got him one and not even a second later he was sleeping on the couch. My poor little boy I hate these things, I am hoping after he has been on his meds a couple days they will stop. But, they were starting to come back before I took him off of it for his rash so I don't know what is going on with it. November 1st is his next neuro appointment unless we get into this other one at Childrens Hospital. Guess we will see.

Bad Night ;(

We had a bad night last night too :( Something I will never get used to! It started out as the normal CPS, but then he did something different. I really hope his seizures aren't changing into the scarey kind. He started with his stare and then his lips were smacking and his eye's were blinking fast. It also looked like he had some small twitches :( Still waiting on a call back from his doctor though. This just makes me a nervous wreck!! I can't stand it. I want him to be better not worse, and it started coming back while on his meds. Why does it have to happen to my little guy, I just want him to be better so he doesn't have to go through this.

He is doing much better!!!

I am redoing my blog since i can't seem to find my other one LOL. BLAH. Rylan is doing pretty well with his seizures lately. He had a small one last Saturday and then that Monday for some reason he was extremely tired. He took a nap at the baby sitters for 5 hours!!! That is the longest he has slept during the day :/ It was probably just an off day for him because after that he has been fine. We switched him from Trileptal to Tegretol because he was to sensitive for it, and it has been working out really well for him. So far the only side effect he has on it is he gets really crabby and emotional right after i give it to him, it eventually goes away, but it can be all night too. But I will take it rather than him be the zombie he was being while on Trileptal. So that's all I have so far on Rylan.