Med side effects

My son had a very rough day yesterday. I feel so bad for him that he has to go through all this. His baby sitter calls me while I am at work and was telling me that he was starting to sleep all day again, he slept all morning then she woke him up for lunch and meds and she said was very disoriented he couldn't even sit up right for lunch and he was crying to go back to sleep. She said he wouldn't walk and when he tried he just fall down and was very unsteady. So we rushed him to the E.R. because his pedi couldn't get him in right away. And when we got there he was fine by the time the doctors seen him. So i am waiting on a call back from his neurologist because E.R. did nothing for him. I really want a different med for him, but i have a feeling that he is just to sensitive to the higher doses :( Today however he is fine and himself again ♥

One Seizure at A Time

It's so hard dealing with this, and i can't understand why it has to happen to my sweet little boy. He has done nothing to deserve this. I love him and i try to stay as strong for him as i can, but sometimes it's really hard. These seizures are just stealing my baby boy from me :( Maybe i am looking for answers in the wrong spots. I know God is in control of everything but I haven't really been that good at praying and talking to God lately :/ I was going to go to church yesterday, but decided not to because Rylan wasn't doing well at that point. He was extremely tired and emotional and it just wouldn't have been good. And at that same time he had his first seizure of 5. It didn't last to long but it was there. So my mom picks us up from my friends house so she can take us to meet hubby in St. Clair, and Rylan falls asleep so it was about 1 o'clock then. We get him home and he stays sleeping for 5 hours. I had also upped his meds over the weekend per the doctors request. So 5 O'clock rolls around and he is fine up until bed time which was at 9. Rylan was playing with his IXL from fisher price and he suddenly stops playing-looks up and stares for about 10 seconds-then resumes playing with his toy. He is getting pretty tired at this point, so the rest of them follow up until he falls asleep at 10. I think because of his seizure activity at bedtime it usually takes him about an hour to fall asleep. I really don't understand why his seizures are becoming more frequent. But, I know we are just dealing with it one seizure at a time.