As of Halloween Rylan started school :) He is doing great and loves going to school to play with the kids. He is also doing well with his seizures we are down to only 1 every two weeks. Of course we had to add a 2nd med to get there but it's improvement. We have been having to up his meds every week and he always does good when his meds are upped at first but once his body gets use to the new levels that's when we start seeing his seizures coming back more and more. So this is his last week of having to up his medication so we will see after this how well this will continue to work for him. But, I love how well he has been doing lately. The part he still isn't doing to well on is his weight. He has grown an inch though which is good, but he is stuck at 27lbs still and it's been 3 months since he has gained any weight. So we have to go back for another check up in February and at that time if he hasn't grown enough they will send him to a specialist. We have to try to get 2 bottles of pediasure in him a day and it's so hard, because he isn't a big drinker. Once i was able to get him to drink a whole can right before bed. But, the Pediasure still isn't helping his weight gain any. His pedi mentioned if he has ever been to a "tummy doctor" before I told him no but I am wondering if maybe we should request a referrell to one or at least maybe get him tested for a milk sensitivity. Last night after he ate a bowl of cereal he was complaining that his tummy was hurting, so I am going to keep a closer eye on that and if I see a pattern then I will bring it up to his pedi. I just hate waiting though when I know there's something going on with him but the doctors just want to wait and see. . .such is life I guess.
