We finally decided to take Rylan to get a 2nd opinion. It was with our Family Doctor and it was the best decision we could have made. My parents helped a lot and paid for the first visit, but my husband and I have decided to pay out of pocket and keep him as one of Rylan's doctors for the big stuff and only go to his pediatrician when he is sick. It's sad it has had to come to that but we were sick of seeing Rylan's issues growing and they were doing nothing about it.
So we took him Friday (12-7-12) and I love this doctor because he doesn't sugar coat anything, and he doesn't do the wait and see game that so many doctors like to do. Granted I am a little impatient, but that's not the doctors fault, I just have to trust that God has control over everything and it will happen on his time not mine. It was easier to see this doctor because he is my doctor and my moms so we knew how he was before we set this appointment up (I just thank God that he see's children:) Anyway he started off by asking us what the problems were so we told him about his lack of growth and how the pedi wasn't doing much and that we were concerned about it. He then examined him and he immediately notices Rylan's lymph nodes and shows concern about it, so I went on to explain the first time we noticed it. I go on to show him a picture of the bump that appeared on his back a few months ago. He says that there are lymph nodes everywhere on your body (his pedi says that wasn't a lymph node -but it moved around like one). So then he asks about any testing that he's had done so I pull out the copies of the tests that I had printed out and he is pretty happy that I had done that. He looks through it and I explain to him what I could remember. There was one time where he had a metabolic panel done when he was just a year old so he looks through that test and see's where there's a test that tested his liver and bones, he said it was higher than he would expect it to be at that stage. He also wants Rylan to get a bone age scan which is just an x-ray of his left wrist and it will tell where his bone age is. He seems 99% sure that it won't be where it should be :(
So Dr. Ross was trying to get Rylan seen by someone at Cardinal Glennon well for some reason they keep denying him because he already see's a neurologist there (what that has to do with his growth is beyond me) so he is trying his hardest to get him in to see someone at Mercy Childrens Hospital. Which may be the better of the two from what I been hearing. I just have to believe that God is taking care of this and that the right doctor for Rylan will step up and see him, so I am trying to be patient with this.
