Failure To Thrive

http://kidshealth.org/parent/growth/growth/failure_thrive.html

This link explains what Failure To Thrive is. Rylan has always been small since birth (5% on growth charts) but it wasn't until he was 3 years old that he stopped being able to gain weight properly he didn't gain at all for a whole year and that alone made him drop on the growth charts which is when his pedi decided that he was FTT. His height also suffered and he isn't growing like he should. He is still off the charts on height but because he is on periactin he has started to gain weight. At 4 years old just reached 31 lbs. He has been through so much. I will also be making other posts about his other health conditions he has too throughout the day.

This pic is of my 2 year old nephew and my 4 year old son. It's a good comparison to see just how small he is.

♥ Lizzy

The Good and the Bad Adventures of Rylan

Sorry it's been a while since I have updated this blog! Just get busy with life and it takes a back burner lol. 

Onto Ryry. . .he has been diagnosed with abdominal migraines and his GI put him on this medication called periactin and it is also used as an appetite stimulant. It has been such a blessing to have him on it. He has been on it for nearly 4 weeks and has already gained 3 lbs! He eats so much now. He can't be on this med permanently though so in 6 months they are going to be taking him off the med. I will be curious to see how he does without it. 

This past Friday he has been starting this new possible seizure :( it's so hard to see him go through this all. In one instance he is doing so good but in other areas he is going backwards. His neuro wants to set him up with a sleep deprived EEG to hopefully catch these, it only happens while he is sleeping though. 

A few updates on little Rylan. Since the last update (in December) Rylan has officially hit the 28 lb mark! This is a big milestone for Rylan, because he was at 27lbs since August of 2012. He just gained this in the last few days so I am a little nervous that it could go back down but I am hoping this sticks :) He also had a good Easter.  The pic above is him on Easter Sunday ♥

So with the good comes the bad. . .

In February of this year he started these weird vomiting episodes where he will cry and hold his tummy in pain, he will do this for a few minutes and then he vomits, he normally will only vomit anything that he has eaten that day and usually nothing more than that, and these usually happens in the mornings so he really doesn't vomit a whole lot. During these episodes he gets real tired, pale and shaky, and then afterwards he falls asleep for a couple hours and then once he wakes up he is completely normal like nothing even happened. He did this for 3 days in a row in February and he also did this for 4 days in a row in March. Every time the exact same thing happens, which along with him falling asleep and that there is a pattern to it has me worried.  So we are set to see a GI specialist tomorrow, to hopefully get to the bottom of his lack of weight gain, vomiting and constipation issues.

Also on April 11th he is going to be inpatient for a 24 hour Video EEG and the next day he is getting an MRI done to make sure nothing has changed. I know we have nothing to worry about but I am a little nervous, because when he had the MRI the last time he just turned 2 and he didn't have all these other symptoms. So I worry that they could find something on his MRI, but I can't let that thought get to me.

He is turning 4 next month and he is so little it makes it hard to believe I will have a 4 year old. He is also doing great in school. He misses quite a few days when he is sick and then all his doctors appointments but they are very understanding about it. Right now he is home sick, he isn't to bad right now, but he is running a slight fever so they don't want him at school if there is a fever. I guess that's all the updates for now ♥