Friday, July 27, 2012

What Makes Rylan, Rylan ♥

This is the most recent picture I have of Rylan. He is doing better as far as seizures are concerned. They just upped his meds to 7.5mls because he was still having seizures and he didn't have one for a couple weeks until last night he had one that lasted only a few seconds. Its so frustrating when he goes only a couple weeks at a time without one and you think they are controlled and then they start all over again. We also found out that along with Epilepsy he also has developmental delays and speech delays. He also isn't growing like he should. He is dropping down the growth chart he was at 5% and now he is down to 2% with height and weight. Its really concerning to me. His pediatrician wants to reevaluate his growth in November so i am hoping they do something then. At least get some tests going on to find out why he isn't growing like he should be. But with all these issues he keeps having he is still going strong and a little fighter. Nothing brings my little man down. He is always smiling, laughing and playing ♥

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