EEG and Seizure Activity?

Rylan just had his second EEG and he did not take it well at all! He was good up until we had to leave and the whole ride up there all he wanted to do was sleep :( so i had to keep waking him up and he would get so upset with me. He tried to hit me a couple of times, but wasn't successful. Then when we got there he was okay up until we had to hold him so they could get the electrodes on his head (which was alot). He got so upset that when it was time for him to go to sleep he had a hard time. At one point he was messing with the electrodes on his head so she had to wrap him up in a blanket so his arms were in the blanket and then he fell right asleep. I think he just wanted to cuddle. We did all that and his results came out normal which is good, just wishing we had more of an answer to his issues :/ 

I have been asking around and it seems that his eye rolling when he gets water in them is not normal for most. I have not talked to the neuro about this yet, but will the next time i call up there. I also have a video of him having a CPS with hand movement too that i want to email to them and have them check it out. 

Good News is: He hasn't had a seizure for 8 days now! :) But, i'm not sure if i am reading to much into this, sometimes he has weird breathing when he is sleeping (which i noticed the day of his eeg when we got home) and he has been having a lot of saliva in his mouth, last night it just kept coming out, and i am not sure what to think of it, because he also fell asleep for a few minutes at 8 o' clock and that was not like him. I am hoping it wasn't seizure activity, because before he fell asleep he was acting weird a few minutes before. I couldn't get him to stay straight up he was kind of acting like a drunk person, and he kept falling down to the ground. 

Well for now that is all the update i have on my baby boy ♥

Updates

I last posted about Rylan's doctor appointment and how they upped his medication to 7.5ml twice a day. I have been noticing a pattern with upped meds. . .it works for about a couple of weeks and then they start slowly coming back! I hate it. It's not affecting him to bad right now, but if we don't get this under control it could affect his learning :/ I don't want to see him struggling through school. It just breaks my heart. This may be because he is only two years old but sometimes he is so tired all he wants to do is sleep, i am really hoping he outgrows that stage because he can't be sleeping in school when he gets school aged. I am planning on putting him in preschool when he is 3-4 years old, hoping that helps him. 

He is also scheduled for another sleep deprived EEG for Monday morning at 10:45 a.m. I was hoping for a longer one so we have a better chance at catching one but for now i will take what i can get for my little man. He apparently may be having them at night while he is sleeping. My mother in law had him over night one night she seen him have one. His eyes opened and he was staring then his eyes started rolling back, and then he fell back asleep. I just want real answers. I am tired of not knowing if these are really seizures or not because now the neuro has put doubts in my head. He is pretty positive these are seizures but there is still that doubt lingering there. 

It sucks to see your child not be there :( Every time he has one my heart stops. I am calm on the outside and freaking out on the inside and it is just a horrible feeling to have. No child should have to go through this. But i do have a lot to be thankful for. It could be a lot worse.

I am not to happy at the moment. More confused than anything, but needless to say i am getting Rylan a 2nd opinion if it's the last thing I do. If a doctor is not sure about their diagnosis then they shouldn't diagnose someone and then treat them until they know for sure, especially with a child!! I took Rylan to his check up with the neuro, and after seeing a video i emailed to him he said it was hard to say whether or not that these are actually seizures. But he is keeping him on the meds and still not doing an eeg unless he has more after the upped meds. That is NOT good enough for my son! I want a doctor who is pro-active in my son's health care, not someone who THINKS they know what it is. I want them to be 100% sure of the diagnosis before they mess my son up with meds and the side effects. GRRRR!