Rylan just had his second EEG and he did not take it well at all! He was good up until we had to leave and the whole ride up there all he wanted to do was sleep :( so i had to keep waking him up and he would get so upset with me. He tried to hit me a couple of times, but wasn't successful. Then when we got there he was okay up until we had to hold him so they could get the electrodes on his head (which was alot). He got so upset that when it was time for him to go to sleep he had a hard time. At one point he was messing with the electrodes on his head so she had to wrap him up in a blanket so his arms were in the blanket and then he fell right asleep. I think he just wanted to cuddle. We did all that and his results came out normal which is good, just wishing we had more of an answer to his issues :/
I have been asking around and it seems that his eye rolling when he gets water in them is not normal for most. I have not talked to the neuro about this yet, but will the next time i call up there. I also have a video of him having a CPS with hand movement too that i want to email to them and have them check it out.
Good News is: He hasn't had a seizure for 8 days now! :) But, i'm not sure if i am reading to much into this, sometimes he has weird breathing when he is sleeping (which i noticed the day of his eeg when we got home) and he has been having a lot of saliva in his mouth, last night it just kept coming out, and i am not sure what to think of it, because he also fell asleep for a few minutes at 8 o' clock and that was not like him. I am hoping it wasn't seizure activity, because before he fell asleep he was acting weird a few minutes before. I couldn't get him to stay straight up he was kind of acting like a drunk person, and he kept falling down to the ground.
Well for now that is all the update i have on my baby boy ♥
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