I last posted about Rylan's doctor appointment and how they upped his medication to 7.5ml twice a day. I have been noticing a pattern with upped meds. . .it works for about a couple of weeks and then they start slowly coming back! I hate it. It's not affecting him to bad right now, but if we don't get this under control it could affect his learning :/ I don't want to see him struggling through school. It just breaks my heart. This may be because he is only two years old but sometimes he is so tired all he wants to do is sleep, i am really hoping he outgrows that stage because he can't be sleeping in school when he gets school aged. I am planning on putting him in preschool when he is 3-4 years old, hoping that helps him.
He is also scheduled for another sleep deprived EEG for Monday morning at 10:45 a.m. I was hoping for a longer one so we have a better chance at catching one but for now i will take what i can get for my little man. He apparently may be having them at night while he is sleeping. My mother in law had him over night one night she seen him have one. His eyes opened and he was staring then his eyes started rolling back, and then he fell back asleep. I just want real answers. I am tired of not knowing if these are really seizures or not because now the neuro has put doubts in my head. He is pretty positive these are seizures but there is still that doubt lingering there.
It sucks to see your child not be there :( Every time he has one my heart stops. I am calm on the outside and freaking out on the inside and it is just a horrible feeling to have. No child should have to go through this. But i do have a lot to be thankful for. It could be a lot worse.
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