Wednesday, November 9, 2011
I am not to happy at the moment. More confused than anything, but needless to say i am getting Rylan a 2nd opinion if it's the last thing I do. If a doctor is not sure about their diagnosis then they shouldn't diagnose someone and then treat them until they know for sure, especially with a child!! I took Rylan to his check up with the neuro, and after seeing a video i emailed to him he said it was hard to say whether or not that these are actually seizures. But he is keeping him on the meds and still not doing an eeg unless he has more after the upped meds. That is NOT good enough for my son! I want a doctor who is pro-active in my son's health care, not someone who THINKS they know what it is. I want them to be 100% sure of the diagnosis before they mess my son up with meds and the side effects. GRRRR!
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http://www.caringbridge.org/visit/hunterisaacson
ReplyDeleteThis is our best friend who's son passed away in June. He also had seizures very often. Her email etc is on this page. Contact her and see who Hunter's doctor's were. Maybe they can help. I can tell you they did everything they could for Hunter it was just not up to them to decided what God had planned for Hunter. I hope all goes well and you find a doctor that you can trust and that can help Rylan control his seizures and to help him have a happy life. You all are in my prayers.